Showing posts with label Ceabert J. Griffith. Show all posts
Showing posts with label Ceabert J. Griffith. Show all posts

Thursday, November 02, 2006

Lots of Things to Think About

concentrating
So far, so good today. I began reading "50 Ways to Control Migraines" by Ceabert J. Griffith, N.D., P.A.-C.

Packed w/ some very informative stuff. It gave me so much to think about and discover about my condition. In a super strange way it's kind of exciting. I'm totally willing to do and/or change things myself that will help and alleviate some of the frequency.

Interesting Info #1
I've put myself on an elimination diet before and discovered a couple of triggers and I already knew one. But there were numerous more that I had questions about. After reading part of this book, many, many foods I had questions about contain "amines, a group of vasoactive, nitrogen-based protein components. These substances cause the blood vessels to narrow and then expand, touching off a headache. The following amines have been implicated:
*Dopamine: in legumes, such as peanuts, peas, broad beans, and soy.

*Tyramine: in aged foods, such as cheese, yogurt, buttermilk, sourdough, and overripe bananas. Red wine, beer, dried or pickled meat, salami, nuts, figs, raisins, avacados, and fish also contain high amounts of tyramine (onions).

*Histamine: in cold water fish, such as salmon and tuna.

*Phenylethylamine in chocolate.

*Octopamine and synephrine in citrus fruits.

*Trytamine: in tomatoes and pineapples." (p.23)

(foods highlighted in green I had already suspected and foods highlighted in orange I had questioned but wasn't sure.)

The interesting thing I noticed in this list, is that last night about 1/2 hour after I ate dinner, my headache hit. I had mentioned before that my menstrual cycle was not over. That, I believe, was factor #1. The other interesting thing though that I noticed on this list, was 2 things I had for dinner. Factor #2 was buttermilk and pecans (nuts). I made buttermilk waffles for dinner and left the syrup off because refined sugar is another suspicious food for me. So to be safe, I left it off and used homemade strawberry freezer jam instead.

One of the things the book said is sometimes it is a combination of triggers. Like, maybe something won't bother you but put it in combination with a couple other factors, specifically menstruation, and it will. I believe that's why there were so many foods I wasn't sure about. It could be the reason why sometimes a food will bother me and other times it won't.

Very interesting...

One thing's for sure, with the way this month has been I am totally in that place again of being afraid to eat. Back are the times where I look in the fridge and close the door because I am scared that what I put in my mouth will hurt me. It's frustrating. Because I do not have an eating disorder. I have a headache disorder that is exascerbated by my eating.

It takes a lot of dilligence to go on an elimination diet, and I had already sort of started. But now, I'm willing to slice off all of these offenders even if they don't trigger me, all because I want to feel better so desparately bad. It's hard, but I'm willing to forego temporary pleasure in the palate for even a few extra days a month that are pain free.

Interesting Info. #2
A couple of other things I noted were that sometimes if you get a headache in an airplane you can take supplemental oxygen and that will help. I am definitely going to ask about that. Once, when I flew to New Zealand, I spent the whole first full day (not when I got there but the full day after I had slept) with a headache. I had to stay in bed w/ the lights off and my head hurting. Sure, maybe it sounds like jet lag but I think it was more than that.

I am going to go to Thailand in about 9 weeks. I've been really concerned about "losing" a day w/ headache due just to the travel itself. I am going to ask my P.A. about the oxygen specifically for this purpose. It is sooo worth a try.

Interesting Info. #3
Migraines w/ aura vs. Migraines w/out aura

I always thought that my migraines did not have an aura. This book explained four phases of a migraine: Prodrome, Aura, Headache and Postdrome.

Found on page 50, prodrome includes fatigue, irritability and food cravings. I have really been noticing that lately I've been craving salt. Other times I will crave chocolate and for decades, I used to crave bread products. Also, yawning is included. Sometimes I will not be tired, but just yawn and yawn, and not be able to stop. Like every couple of minutes. It's quite strange. I've always sort of wondered about this and thought it odd. People will say, "Are you tired?" and I would say, "No!"

Aura includes "vision disturbances; numbness or weakness on one side of the body; slurred speach; sensitivity to light and sound." (also on p. 50) What I need to ask my doctor about is this: sometimes when I'm looking at something, my eyes will shift back and forth very fast. Now, this is something that has happened to me off and on for so long that I can't remember when it started. It doesn't seem like a flashing light to me, but my eyes definitely dart and for a split second, I can't see. It's just a split second and doesn't endanger me in any way or impair me. It's about as fast as a blink of an eye. Also, and I told my doctor this, (actually many doctors!) that sometimes I will be irritable and sensitive to sound and later, maybe within a half hour or hour or so, a migraine will start. There have been a few times when I haven't been having lots of headaches that I take abortive medications for, that I will take a maxalt, imitrex or frovatriptan (abortive medicine) at this stage. Miracle of miracles, the irritability disappears as well as the noise sensitivity and the headache will never come.

I am wondering if I should pay attention to these symptoms better, especially during my cycle, and take my medications then instead of waiting for the pain. This wouldn't always work, sometimes the pain comes first. Or, maybe I'm so used to the "aura" that I miss it.

These are wonderful questions I have for my doctor now.

Last Night There Was a Freakin' Baby Kicking Around in my Leg....

geesh!
Geesh! It was a great day yesterday, but in the evening, around 7:30, my left temple started to hurt. It wasn't but 30 min. and it was ramping up. Since it's still technically a menstrual migraine I decided to do the DHE injection and not let it get very far out of control...to the point where it wouldn't subside w/out a lot of drugs!DHE oh ya!

Like last time, first I took the compazine and waited 20 min. I got the syringe ready before my thinking diminished anymore and i wouldn't screw it up like last Thursday.

This time I put it in my right thigh and made sure I was extremely relaxed in that muscle, hoping that my leg wouldn't hurt so bad and for so long like it did on Monday.

It didn't hurt when the medicine was going in, but as soon as I pulled the syringe out my leg started to hurt. Man, that's the weirdest thing. Last night I could have used a pair of crutches, it would have been easier to get around.

I layed down and iced the site and pretty soon the muscle started twitching. Then, it started twitching all up and down the top part of my thigh. It felt like there was a baby inside kicking around in my leg.

I was a little nervous about it because I have started the beta blocker and all, and I can't see what's going on in there. I took 2 aleve to help with the migraine, the pain in my leg, and was hoping that it would help the jumpiness in my muscle. But, just to make sure, we called the Advice Nurse and she said it would be gone by the morning and that I had probably nicked or gotten closer to nicking a nerve. That made sense to me so I didn't worry about it. Within 2 -2 1/2 hours after the injection my migraine pain was gone, and within another hour my leg stopped hurting so I could walk on it. Also, this time I had no pain in my back and chest which had concerned me on Monday. So, all in all, pretty successful.

I did, however, wake up @ 2 a.m. and was still up @ 3. And, I felt wide awake, like it was morning or something. I decided that with just getting over the migraine that losing sleep would probably not help things any. I took 1 Ativan (anti-anxiety) to see if it would help me sleep and probably within a 1/2 hr. I was back in dreamy land.

My concern now, is that my menstrual cycle doesn't seem to be over yet. My DHE perscription says that the injections are for 2-3 x a month. I'm not counting the first one I did since I am positive I didn't have any medicine in it. So that makes 2x so far. But, since I just went off the Levlen (oral b.c. pill for menstrual migraine) it could take a while to get back on my regular cycle. All I'm supposed to be treating myself w/ is Aleve w/ either DHE or Frovatriptan, and those are to be used 2x week. I'm not worried about the 2x week so much right now because he said there'd be bad weeks and with the menstrual action going on, I'm definitely in that week. It's just that if the bleeding continues and I have to do one more injection in the next couple of days, I will pretty much be out of options of how I can help myself here and stay w/in my doctor's orders.

I would just e-mail him about this but he won't be back in the office for 5 more days. I will definitely need to contact him then. I could leave a message with one of his partners, but when I did that last week I never got a call back.

I don't want to annoy the people who are trying to help me (i.e. shoot my help in the foot) but at the same time I need to stay within the parameters that the PA gave me. I have a lot of questions because I have more than 2x a week, so what am I supposed to do on the other days I get one? If it's just pressure @ a 3-4 I can pretty much get by w/ staying home, using ice and heat, not doing any housework and using tiger balm and/or salonpas, peppermint oil. But, if it's the menstrual type, the ones that start up fast and feel more burning, then I can't not treat these. I know he knows that too and doesn't want to leave me hanging, I just didn't take the time to get clarification on how to attack these.

I think he was thinking that I would get IV magnesium sulfate in these in between circumstances. But, we didn't know that 1: I would have to go 40 min. to over an hour away 2. each time I get a treatment the doctor has to call it in and o.k. it first 3. the first time I tried it it didn't help.

I think I can make it until monday though. I really hope. Including today, it's just 5 days away. I cannot predict what will happen in 5 days but I'm sure even though it could be difficult that I can make it until then.

Thank God I'm feeling better today though. Shelley picked me up this morning in her new Honda Element and I went to Starbucks w/ my other friend Susan and their friend Cindy. Shelley's new Honda ElementIt's a small thing, but was so nice to have a little girl time. When I got home I started a fire in my woodstove so it's nice and toasty down there. I got 2 new books yesterday that the PA wanted me to read, so think I will take my TAZO Green Tea down there, curl up and start reading "50 Ways to Control Migraines" by Ceabert J. Griffith, N.D., P.A.-C.