Sunday, November 05, 2006
can i have a little help please?
Right now as I sit here eating my scrambled egg dinner (I couldn't bring myself to eat Chinese Food @ our Thailand meeting for fear of pain) I think I may have had my question answered that I threw across the sky this morning. Perhaps it didn't fall on deaf ears.... "can I have a little help please?" *I was actually hopeful when I said that.
It was a beautiful morning for walking. It had just gotten light out and the fog was just hanging low across the fields near where I walk and onto the tops of the trees. lovely! Even the ducks greeted me this morning and walked along with me for a while. They were my buddies!
And as I walked I was thinking about my worsening headaches of course, because it seems that lately it's about all I think about. It occured to me that my Lamictal was increased from 100mg. to 15omg. in early October (turns out Oct. 4th actually). That's about the time my "month from hell" started.
Then, I realized that the next dosage increase came Sept. 25th, and immediately, the next day in fact, I ended up getting IV medications and the next night landed in the E.R. The rest you are familiary with from the previous posts in the last week. This dosage increase was from 150mg. to 200mg.
Could there be a link between my worsening headaches and the Lamictal? It would be terrible if there was. It has helped me such a great deal with my moods (not counting the anxiety during menstruation and high pain levels). But overall, my husband admits I seem more loving, as in caring and nicer to be around.
But HARK! The headaches most definitely have gotten worse after each increase....
I braved church today. I took earplugs and did alright because I was feeling great before I left. We sold a few calendars this morning, about 5, and that is better than nothing.
After church my friend came and talked to me. She recently went on Lamictal and said her dose was 200mg. The interesting thing though, is she's had daily headaches since starting the medication. The other day she even had a migraine and she says she's never had one before.
I FREAKED! I had just made this correlation a few hours ago, and here she was confirming it w/out me even bringing it up!
When I got home I called the pharmacy and asked them about side effects. He said that yes, headache could be a side effect. So, although I don't know for sure, I e-mailed my PA and told him about my concern and what I've been noticing. Fortunately, all my trips to the doctor for IV meds are in my chart so it will be easy for him to substantiate that. Also, if he has more questions or needs more information, I can direct him to this blog.
It sounds crazy, but I'm so excited even though I was quite fearful at first. There are other mood stabilizer/migraine meds I can go on and this means that the increased frequency isn't a permanent thing, just due to a reaction with the medication.
The other day I asked myself the question: What kind of twisted life lesson am I supposed to learn from all this?
I think I've learned a few things in the last month.
1) that I am capable of going to the doctor or hospital when miserable, asking for help, and getting it
2) that I can e-mail my doctor and he will e-mail back and even order pain control for me
3) that I have lots of friends who love me and care about me and want to help me, especially with the children
4) that my husband wants to help me, hurts when I hurt and would do anything to help me get better
5) that IV magnesium DOES NOT work for me and even makes me feel worse
6) that sometimes I need extra aleve with DHE injections of IV's, and that if you inject yourself too close to a nerve your muscles will spaz out
7) that the throbbing pain pulsing through my neck was from borderline high blood pressure
8) that when I'm menstruating, along with super high pain, I tend to get very anxious and agitated. by asking for help, I can get medication that will keep me safe during this time
9) that there usually is a cause, explanation or a reason for what's happening to me, even if the answers are a long time in coming
10) that once pushed to the limit, I will do anything and give up anything (in this case a variety of foods) in order to be proactive in feeling better.
So, all in all, the help hasn't come yet. I'm hoping to hear a response back tomorrow, and if I haven't by late afternoon I will call my PA's advice line or leave a message for him on his voicemail. However, he seems to be exceptionally speedy and helpful with his responses, he may just have a backlog of messages from being out of the office for a week.
Tomorrow is a new day, and I will take it as it comes and deal with it the best I can.
Labels:
chronic pain,
exercise,
i.v. magnesium sulfate,
i.v. medication,
lamictal,
medicine,
pain,
revelation,
walking
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4 comments:
You are always in my prayers. I'm glad the ducks let you enjoy their company for awhile! GJ
thanks grandma jacki- you're the greatest!
I was reading once that sometimes God sends little love letters just for you (or me or whoever), and we just have to open our eyes to see them. Sounds like those ducks were His was of telling you you're not alone!
I will say a prayer for you!
jana- i think you're right. the questionable medicine that came up in my mind as I was walking has now gotten a speedy response when I asked about it. that will be in my next post.
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